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KEN 24T

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  • Not pregnant
  • Donating Members
  • Member For: 13y 1m 5d
  • Gender: Female
  • Location: Melbourne

Morning all.

Found out that they've changed my sisters diagnosis, as they no longer believe she has leukemia. While normally this would be cause for celebration, it's actually not.

She's been re-diagnosed with severe aplastic anaemia, which is a rediculously rare auto-immune disease. It's similar to leukemia, but it's not a cancer. Instead, her bone marrow is dying.

Last week I was told that I may have to have a blood test to see if I'm a match with her. Now this is definitely going ahead, as if the drugs she's on dont work, she'll need a bone marrow transplant.

It's such a stressful time. The version of this that she has isn't contagious, isn't inheritable, and only affects 2 in a million people world wide, but she is the second person in my immediate family to come down with this illness.

Blood and platelet donations will literally keep her alive.

I know it's bad to wish an illness on a family member, but I wish she had leukemia instead.

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  • Bored Member
  • Administrator
  • Member For: 22y 1m 29d
  • Gender: Male
  • Location: Dé·jà vu

It sucks that something that sucks sucks even more now Adie, just read her post on your wall she seems very positive about it all which is a good thing. All the best to her.

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  • Not pregnant
  • Donating Members
  • Member For: 13y 1m 5d
  • Gender: Female
  • Location: Melbourne

She's one tough cookie, and she won't let this defeat her.But it's a long road ahead.

I feel lost, because she's my younger sister and I should be able to protect her. But I can't.

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  • Bob the Freaking Builder
  • Donating Members
  • Member For: 15y 3m 30d
  • Gender: Female
  • Location: SA

Aide I'm so sorry...

So if they find a suitable marrow doner can she be cured ? Or is it and on going thing forever she will constantly need transfusions and so forth?

I really hope that things start to get better for u all. Xxx

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