Thanks camo.
Basically my disease turns healthy tendons calcified then to bone, including in my spine and major joints through major inflammation caused by an auto immune response.
Its weird, some days I’m at the gym pumping it out feeling pretty okay (never great but somewhat normalish), then the next day I might not be able to move as inflammation consumes my joints, mainly my back and pelvis, which causes huge pain and stiffness, (80%of bone marrow in my pelvis is inflamed on my last MRI), then because my body works so hard attacking itself I have zero energy some days, like today, and can barely function. Plus like the strongest aching pain in my back and pelvis... like feels like I’ve broken something. It effects my eyes as well (they jump around due to inflamed eye tendons) and my other joints like feet, chest and ribs aswell as giving my crohns.
The best thing to do is rest to let me body conserve energy and heal as with any auto immune disease, but at the same time I have to keep active to ensure I don’t literally fuse all my bones together and staying stagnant is what causes mass pain... so night times are a karnt for me, can’t lay down comfortably anymore without drugs basically, and if I’ve been sitting on a hard chair for more than an hour I’m farrked. I had to attend a Tec meeting the other day and two hours in I was in so much pain I ended up standing up for an hour like a rude asshole just to relieve it (luckily I had the energy that day).
I have injections weekly to try and stop the progression, which stop my immune system from working, which makes me sick more often.
Anyways sorry for the rant hahah.
Hows everyone else going?
Whats new... so quiet in here these days... at least I have Keith to reference what day it is though hahah.